Jeremy's doctor appointment was canceled today. We were a little disappointed, it would have been nice to get his input into the eating, weight lose, ouch, ouch, ouch things.
Jeremy continues to work hard in physical therapy. Sometimes he doesn't like it and complains a lot but they continue no matter what Jeremy says! Today they had him up on his elbows and knees over a peanut ball. He still has quite a bit of uncontrolled "tone" on his right side so it makes it hard impossible to control Jeremy. They have to wait for Jeremy's body to cooperate. Patience is still the name of the game.
This facility doesn't have a wheelchair that fits Jeremy's needs, therefor several times today he started to slide out of the chair. When that "tone" hits he straightens his legs and hips a little and it makes it pretty easy to just slide lower in or out of the chair. You just have to keep an eye on him. During dinner tonight he started to slide. What a smart way to get out of eating dinner!!! I was going to make him sit there until he ate more. That didn't happen.
Please continue to pray they we will have patience - all of us, Jeremy included.
Wednesday, November 11, 2009
Tuesday, November 10, 2009
November 10
Jeremy has a doctor visit tomorrow. This will be his first trip out of this facility. The appointment is with the Rehab doctor from St Als. It will be interesting to see how that goes. We will keep you posted. There has been several changes in his medications since he left the hospital. He does complain of pain in his lower back or bottom area. I keep telling him he needs to sit up straight and that would be better:)
He ate a little better again tonight. I pray things are changing there. One of the therapist told him today that was why his back or bottom hurt. He had lost so much weight he has no more padding.
When his grandmother left the hospital today she asked if she could give him a kiss good-bye. He said yes and then he turned and gave her a kiss on the cheek. She was surprised and thrilled. That is the first time he has done anything like that.
Thank you for your prayers.
He ate a little better again tonight. I pray things are changing there. One of the therapist told him today that was why his back or bottom hurt. He had lost so much weight he has no more padding.
When his grandmother left the hospital today she asked if she could give him a kiss good-bye. He said yes and then he turned and gave her a kiss on the cheek. She was surprised and thrilled. That is the first time he has done anything like that.
Thank you for your prayers.
Monday, November 9, 2009
November 9
JEREMY ATE DINNER! He was the last person in the dining room tonight. He didn't finish everything but he ate more than he has in a long time. He even had ice cream after he got back to his room.
Jeremy's right arm is still very tight and has very little movement. We have been talking to him and trying to encourage him to "move it or lose it". He has been taking it to heart and has been asking us to help him with exercises for that arm. Saturday he asked me to hold his hand (which helps him stretch out his fingers and thumb. We gently rub his muscles to try to get them relaxed enough to move. He as been doing that everyday since then. Tonight we were moving that are up and down (from the bed to his shoulder area). He is getting a little better in controlling that arm. When he needs help he ether uses his left hand (to help the right one) or he asks us to help him. It is so good to see him start to move that arm.
Thank you for your thoughts and prayers.
Jeremy's right arm is still very tight and has very little movement. We have been talking to him and trying to encourage him to "move it or lose it". He has been taking it to heart and has been asking us to help him with exercises for that arm. Saturday he asked me to hold his hand (which helps him stretch out his fingers and thumb. We gently rub his muscles to try to get them relaxed enough to move. He as been doing that everyday since then. Tonight we were moving that are up and down (from the bed to his shoulder area). He is getting a little better in controlling that arm. When he needs help he ether uses his left hand (to help the right one) or he asks us to help him. It is so good to see him start to move that arm.
Thank you for your thoughts and prayers.
Sunday, November 8, 2009
November 8
A friend of Jeremy's who hasn't been by to see him for about 2 weeks stopped by to see him and I realized again how important it is for us to hear other peoples perspective. We see Jeremy on a daily basis and miss some of the small changes. She pointed out how much more relaxed Jeremy was and how much better he was speaking. He still has a long way to go but thank you for the words of encouragement. Jeremy needs it and so do we.
Jeremy received a pep talk today from the grandson of one of his teachers (from Walla Walla University) about not eating. It was very cute to see these two kids telling Jeremy he had to eat in order to get better so he could come and see them in Washington. Again - Thank you for encouraging Jeremy!
Thank you for your thoughts and prayers.
Jeremy received a pep talk today from the grandson of one of his teachers (from Walla Walla University) about not eating. It was very cute to see these two kids telling Jeremy he had to eat in order to get better so he could come and see them in Washington. Again - Thank you for encouraging Jeremy!
Thank you for your thoughts and prayers.
Saturday, November 7, 2009
November 7
Jeremy had a pretty full day today. Family, friends and a mother (and nurses) desperate to get him to eat 3 bites. I got up this morning early enough to go to check out Jeremy's breakfast action! As I sat there, one of the people assisting someone else with eating, commented that I got him to eat more than they had. It made it worth getting up at 6:30 on a Saturday morning. What did I get him to eat? 1 bowl of cream of wheat, 5 small bites of banana and a bowl of yogurt. Dinner tonight was a different story - we were back to the 3 bites. I think I am obsessing over food. One of the therapist's tells me it's just a phase and he will get over it. I hope it comes soon.
It was a beautiful fall day so we went outside again with a friend of Jeremy's who came down from Walla Walla, WA. He was very patient with Jeremy in trying to figure out what he was saying. Like I said Jeremy speaks so fast and quiet it is hard to understand. I appreciate how much fun he made it trying to catch what Jeremy was saying. Jeremy just laughed!!
I asked someone today what we had to do to get Jeremy an afternoon leave pass. They are looking into what we have to do. I thought it might be nice to bring Jeremy home for an afternoon. So Jeremy can see "his bedroom" and "home".
Thank you for your support, encouragement and prayers.
It was a beautiful fall day so we went outside again with a friend of Jeremy's who came down from Walla Walla, WA. He was very patient with Jeremy in trying to figure out what he was saying. Like I said Jeremy speaks so fast and quiet it is hard to understand. I appreciate how much fun he made it trying to catch what Jeremy was saying. Jeremy just laughed!!
I asked someone today what we had to do to get Jeremy an afternoon leave pass. They are looking into what we have to do. I thought it might be nice to bring Jeremy home for an afternoon. So Jeremy can see "his bedroom" and "home".
Thank you for your support, encouragement and prayers.
Friday, November 6, 2009
November 6
Jeremy continues to struggle with his eating. They have started to count calories again. His nurse decided that eating half of who know what wasn't good enough since they discovered he lost about 7 pounds this last week. They have a dietitian coming in tomorrow to review it out tomorrow. They are going to supplement more - I guess they haven't been supplementing enough. He doesn't look like he lost that much weight, but better to stay on top of it.
Jeremy continues to ask to come home and I continue to tell him he needs to eat more before we can bring him home.
Thank you for your prayers
Jeremy continues to ask to come home and I continue to tell him he needs to eat more before we can bring him home.
Thank you for your prayers
November 6
I read the comment from yesterdays blog and she was right on target. When I went to visit Jeremy after work today that is exactly what he was saying "I want to go HOME". When I told him we wanted that also, as soon a he got better. He told me he was better and he wanted to go home right now. If I told him we couldn't do it right now he would ask "Why?" I told him he needed to start eating better before we could take him home. He has to get rid of that feeding tube. I hope we can use this to motivated him to eat better.
I was talking to one of the nurses who was watching part of this exchange. She said he is "waking up" more. It just goes to show you the more we think we understand - the more we find out we don't. We thought he was "awake". But we are learning as we go along.
Our ultimate goal is to get Jeremy home. We are learning that we may need to make some changes to our home to accommodate some of Jeremy's needs. This process may take longer than we originally thought. It might take longer than we thought for Jeremy to get the upper body strength he need to get out of the wheelchair.
Thank you for your prayers!
I was talking to one of the nurses who was watching part of this exchange. She said he is "waking up" more. It just goes to show you the more we think we understand - the more we find out we don't. We thought he was "awake". But we are learning as we go along.
Our ultimate goal is to get Jeremy home. We are learning that we may need to make some changes to our home to accommodate some of Jeremy's needs. This process may take longer than we originally thought. It might take longer than we thought for Jeremy to get the upper body strength he need to get out of the wheelchair.
Thank you for your prayers!
Wednesday, November 4, 2009
November 4
Today was a beautiful day in Boise so this afternoon we went for a little walk outside. When we got outside Jeremy was very specific in which direction he wanted to go. If I turned the wrong way he would tell me to turn around or go left, whatever. There were 2 buses, one on each end of the parking lot. Jeremy wanted to check them out. I'm thinking he wanted to go for a ride. When we got closer to the second bus Jeremy started to slide out of his wheelchair so we had to make a fast trip back before he slid all the way out. Jeremy thought that was pretty funny.
About a hour before dinner tonight Jeremy said he wanted to go back to his room and when we did he still said NO he wanted to go to "HIS" room. I asked him where that was and he directed me clear to the other end of the hall. He was so adamant about it I took him back to the room and he did the same thing all over again. After about 1/2 hour of this I got worried and talked to the nurse about it. He nurse thought Jeremy might be coming down with something (infection) and that was the reason he was so confused or disoriented. They will do some tests to see if they can catch it early if he is coming down with something.
He has had a lot of changes in the past week so it must be a little overwhelming at times. Changing hospitals, medications and then rooms and more med changes.
Thank you for your prayers!
About a hour before dinner tonight Jeremy said he wanted to go back to his room and when we did he still said NO he wanted to go to "HIS" room. I asked him where that was and he directed me clear to the other end of the hall. He was so adamant about it I took him back to the room and he did the same thing all over again. After about 1/2 hour of this I got worried and talked to the nurse about it. He nurse thought Jeremy might be coming down with something (infection) and that was the reason he was so confused or disoriented. They will do some tests to see if they can catch it early if he is coming down with something.
He has had a lot of changes in the past week so it must be a little overwhelming at times. Changing hospitals, medications and then rooms and more med changes.
Thank you for your prayers!
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