September 9

Debi and Greg talked to the doctor this morning who will be putting in Jeremy's baclofen pump. It was difficult to hear from him that Jeremy's spasticity is the worst he's ever seen. Debi made sure to clarify that he is a fairly young doctor, but still. They plan to put in the pump tomorrow sometime between 11:00 AM and 2:30 PM, so pray for Jeremy and the doctor. The pump goes in his spine so it's a very serious procedure, although they've done quite a few of them now.

Debi told me that they asked the doctor about taking the pump out, when that would happen, and he said that since the procedure is so new, he's never taken one out yet. Being on the cutting edge of new procedures is great, but also a little worrisome since there's not much evidence yet as to the effects of the procedure. However, what evidence they do have is very good.

As they dial in the correct dosage on the baclofen pump in the next few weeks, they will be reducing the amount of the baclofen that they're giving Jeremy orally. The doctor said that we should see an increase in Jeremy's cognition and reaction, more so from the reduction of oral baclofen than from the affects of the baclofen pump. That really exciting since we'd all like to see Jeremy "come around" a little more.

Pray for Jeremy today and that God will guide the doctor's hands in the surgery.
Courtni

P.S. Happy 30th Anniversary to Greg and Debi!