December 5

Sorry about the lapse. Jeremy has had a good week. They have been working him really hard in all of his therapies and he is very tired by the end of the day. They have really worked hard on sitting by himself on the edge of the bed, standing frame, tilt table, rolling over, laying on his stomach. All things he is still working on being able to do by himself. Building up those muscles!

Jeremy gained 10 pounds last week so we talked to the nurse today about why they were still doing the tube feedings at night. He not only eats his meals but he eats afternoon & evening snacks. We were told at one point that the patient has the right to refuse service or medication. We decided that we would "refuse" the tube feeding for the next couple of days. At least until they can talk to the dietitian or the doctor. We looked up Jeremy's height to determine what he should weigh and the chart we saw said no more than 195 and Jeremy now weighs 190. He looks good! We will see how it goes. One day at a time!

Jeremy was in one of those "I want to go home" moods again today. I told him we had to have patience and he said "Don't we have patience". It made me laugh. How many times have I said that exact thing in the last 6 months.

Thank you for your continued prayers!